Choosing Down Syndrome - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Choosing Down Syndrome write by Chris Kaposy. This book was released on 2022-08-09. Choosing Down Syndrome available in PDF, EPUB and Kindle. An argument that more people should have children with Down syndrome, written from a pro-choice, disability-positive perspective. The rate at which parents choose to terminate a pregnancy when prenatal tests indicate that the fetus has Down syndrome is between 60 and 90 percent. In Choosing Down Syndrome, Chris Kaposy offers a carefully reasoned ethical argument in favor of choosing to have such a child. Arguing from a pro-choice, disability-positive perspective, Kaposy makes the case that there is a common social bias against cognitive disability that influences decisions about prenatal testing and terminating pregnancies, and that more people should resist this bias by having children with Down syndrome. Drawing on accounts by parents of children with Down syndrome, and arguing for their objectivity, Kaposy finds that these parents see themselves and their families as having benefitted from having a child with Down syndrome. To counter those who might characterize these accounts as based on self-deception or expressing adaptive preference, Kaposy cites supporting evidence, including divorce rates and observational studies showing that families including children with Down syndrome typically function well. Himself the father of a child with Down syndrome, Kaposy argues that cognitive disability associated with Down syndrome does not lead to diminished well-being. He argues further that parental expectations are influenced by neoliberal ideologies that unduly focus on the supposed diminished economic potential of a person with Down syndrome. Kaposy does not advocate restricting access to abortion or prenatal testing for Down syndrome, and he does not argue that it is ethically mandatory in all cases to give birth to a child with Down syndrome. People should be free to make important decisions based on their values. Kaposy's argument shows that it may be consistent with their values to welcome a child with Down syndrome into the family.
Down's Syndrome Screening and Reproductive Politics
Down's Syndrome Screening and Reproductive Politics - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Down's Syndrome Screening and Reproductive Politics write by Gareth M. Thomas. This book was released on 2017-03-16. Down's Syndrome Screening and Reproductive Politics available in PDF, EPUB and Kindle. Nominated for the Foundation of Sociology of Health and Illness Book Prize 2018 In the UK and beyond, Down’s syndrome screening has become a universal programme in prenatal care. But why does screening persist, particularly in light of research that highlights pregnant women’s ambivalent and problematic experiences with it? Drawing on an ethnography of Down’s syndrome screening in two UK clinics, Thomas explores how and why we are so invested in this practice and what effects this has on those involved. Informed by theoretical approaches that privilege the mundane and micro practices, discourses, materials, and rituals of everyday life, Down’s Syndrome Screening and Reproductive Politics describes the banal world of the clinic and, in particular, the professionals contained within it who are responsible for delivering this programme. In so doing, it illustrates how Down’s syndrome screening is ‘downgraded’ and subsequently stabilised as a ‘routine’ part of a pregnancy. Further, the book captures how this routinisation is deepened by a systematic, but subtle, framing of Down’s syndrome as a negative pregnancy outcome. By unpacking the complex relationships between professionals, parents, technology, policy, and clinical practice, Thomas identifies how and why screening is successfully routinised and how it is embroiled in both new and familiar debates surrounding pregnancy, ethics, choice, diagnosis, care, disability, and parenthood. The book will appeal to academics, students, and professionals interested in medical sociology, medical anthropology, science and technology studies (STS), bioethics, genetics, and/or disability studies.
Expecting Adam
Expecting Adam - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Expecting Adam write by Martha Beck. This book was released on 2011-08-02. Expecting Adam available in PDF, EPUB and Kindle. NEW YORK TIMES BESTSELLER • A candid and moving memoir of how one woman’s pregnancy forced her to confront her definition of how to live a successful life “Slyly ironic, frequently hilarious, [Martha] Beck’s memoir charts the journey from being smart to becoming wise.”—Time This edition includes a new afterword about Adam. From the moment Martha and her husband, John, accidentally conceived their second child, all hell broke loose. They were a couple obsessed with success. After years of matching IQs and test scores with less driven peers, they had two Harvard degrees apiece and were gunning for more. They’d plotted out a future in the most vaunted ivory tower of academe. But when their unborn son, Adam, was diagnosed with Down syndrome, doctors, advisers, and friends in the Harvard community warned them that if they decided to keep the baby, they would lose all hope of achieving their carefully crafted goals. Fortunately, that’s exactly what happened. By the time Adam was born, Martha and John were propelled into a world in which they were forced to redefine everything of value to them, put all their faith in miracles, and trust that they could fly without a net. And it worked. Expecting Adam captures the abject terror and exhilarating freedom of facing impending parenthood, being forced to question one’s deepest beliefs, and rewriting life’s rules.
Testing Women, Testing the Fetus
Testing Women, Testing the Fetus - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Testing Women, Testing the Fetus write by Rayna Rapp. This book was released on 2004-11-23. Testing Women, Testing the Fetus available in PDF, EPUB and Kindle. Rich with the voices and stories of participants, these touching, firsthand accounts examine how women of diverse racial, ethnic, class and religious backgrounds perceive prenatal testing, the most prevalent and routinized of the new reproducing technologies. Based on the author's decade of research and her own personal experiences with amniocentesis, Testing Women, Testing the Fetus explores the "geneticization" of family life in all its complexity and diversity.
The Paradox of Increased Choice
The Paradox of Increased Choice - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Paradox of Increased Choice write by Dena E. Freeman. This book was released on 2008. The Paradox of Increased Choice available in PDF, EPUB and Kindle.
