Consumer Genetic Technologies - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Consumer Genetic Technologies write by I. Glenn Cohen. This book was released on 2021-09-16. Consumer Genetic Technologies available in PDF, EPUB and Kindle. Examines the ethical, legal, and regulatory challenges presented as genomics become commonplace, easily available consumer products.
CyberGenetics
CyberGenetics - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook CyberGenetics write by Anna Harris. This book was released on 2016-04-28. CyberGenetics available in PDF, EPUB and Kindle. Online genetic testing services are increasingly being offered to consumers who are becoming exposed to, and knowledgeable about, new kinds of genetic technologies, as the launch of a 23andme genetic testing product in the UK testifies. Genetic research breakthroughs, cheek swabbing forensic pathologists and celebrities discovering their ancestral roots are littered throughout the North American, European and Australasian media landscapes. Genetic testing is now capturing the attention, and imagination, of hundreds of thousands of people who can not only buy genetic tests online, but can also go online to find relatives, share their results with strangers, sign up for personal DNA-based musical scores, and take part in research. This book critically examines this market of direct-to-consumer (DTC) genetic testing from a social science perspective, asking, what happens when genetics goes online? With a focus on genetic testing for disease, the book is about the new social arrangements which emerge when a traditionally clinical practice (genetic testing) is taken into new spaces (the internet). It examines the intersections of new genetics and new media by drawing from three different fields: internet studies; the sociology of health; and science and technology studies. While there has been a surge of research activity concerning DTC genetic testing, particularly in sociology, ethics and law, this is the first scholarly monograph on the topic, and the first book which brings together the social study of genetics and the social study of digital technologies. This book thus not only offers a new overview of this field, but also offers a unique contribution by attending to the digital, and by drawing upon empirical examples from our own research of DTC genetic testing websites (using online methods) and in-depth interviews in the United Kingdom with people using healthcare services.
Direct-to-Consumer Genetic Testing
Direct-to-Consumer Genetic Testing - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Direct-to-Consumer Genetic Testing write by National Research Council. This book was released on 2011-01-16. Direct-to-Consumer Genetic Testing available in PDF, EPUB and Kindle. Today, scores of companies, primarily in the United States and Europe, are offering whole genome scanning services directly to the public. The proliferation of these companies and the services they offer demonstrate a public appetite for this information and where the future of genetics may be headed; they also demonstrate the need for serious discussion about the regulatory environment, patient privacy, and other policy implications of direct-to-consumer (DTC) genetic testing. Rapid advances in genetic research already have begun to transform clinical practice and our understanding of disease progression. Existing research has revealed a genetic basis or component for numerous diseases, including Parkinson's disease, Alzheimer's disease, diabetes, heart disease, and several forms of cancer. The availability of the human genome sequence and the HapMap, plummeting costs of high-throughput screening, and increasingly sophisticated computational analyses have led to an explosion of discoveries of linkages between patterns of genetic variation and disease susceptibility. While this research is by no means a straight path toward better public health, improved knowledge of the genetic linkages has the potential to change fundamentally the way health professionals and public health practitioners approach the prevention and treatment of disease. Realizing this potential will require greater sophistication in the interpretation of genetic tests, new training for physicians and other diagnosticians, and new approaches to communicating findings to the public. As this rapidly growing field matures, all of these questions require attention from a variety of perspectives. To discuss some of the foregoing issues, several units of the National Academies held a workshop on August 31 and September 1, 2009, to bring together a still-developing community of professionals from a variety of relevant disciplines, to educate the public and policy-makers about this emerging field, and to identify issues for future study. The meeting featured several invited presentations and discussions on the many technical, legal, policy, and ethical questions that such DTC testing raises, including: (1) overview of the current state of knowledge and the future research trajectory; (2) shared genes and emerging issues in privacy; (3) the regulatory framework; and (4) education of the public and the medical community.
Just Genes
Just Genes - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Just Genes write by Carol Isaacson Barash. This book was released on 2007-12-30. Just Genes available in PDF, EPUB and Kindle. Advances in genetics research, largely, though not entirely, spawned by the Human Genome Project, have led to a broad array of new technologies that promise to revolutionize life as we have known it. Medicine and agriculture are already starting to utilize new technologies to greatly improve disease prevention and treatment and food production. Yet, these improvements often raise ethical questions that are not easy to untangle. Some have gone as far to as to argue that certain applications, such as embryonic stem cell research, threaten the very fiber of our moral compass. While the application of scientific advances to better humankind has always raised thorny ethical issues, the ethical impact of genetic advances arguably reaches a new height because the applicability of advances is exceptionally broad, deep, and potentially irreversible. To utilize such technologies could mean saving thousands of lives, but where and how do we draw the line? Here, Barash sheds light on the actual ethical concerns surrounding various types of genetic technologies, introducing readers to the competing issues at stake in the arguments about the scientific application of the new technologies available and those on the horizon. She begins by illustrating the history of genetic advances, their societal applications, and the ethical issues that have arisen from those applications. Using case studies and examples throughout, she walks readers through the various considerations involved in a variety of areas related to the application of genetic technologies currently available and possible in the future. Covering topics ranging from stem cell research to genetically modified food, genetic mapping to cloning, this book offers a thoughtful approach to the complex issues at play in the various fields of genetic technologies.
The Gene Machine
The Gene Machine - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Gene Machine write by Bonnie Rochman. This book was released on 2017-02-28. The Gene Machine available in PDF, EPUB and Kindle. A sharp-eyed exploration of the promise and peril of having children in an age of genetic tests and interventions Is screening for disease in an embryo a humane form of family planning or a slippery slope toward eugenics? Should doctors tell you that your infant daughter is genetically predisposed to breast cancer? If tests revealed that your toddler has a genetic mutation whose significance isn’t clear, would you want to know? In The Gene Machine, the award-winning journalist Bonnie Rochman deftly explores these hot-button questions, guiding us through the new frontier of gene technology and how it is transforming medicine, bioethics, health care, and the factors that shape a family. Rochman tells the stories of scientists working to unlock the secrets of the human genome; genetic counselors and spiritual advisers guiding mothers and fathers through life-changing choices; and, of course, parents (including Rochman herself) grappling with revelations that are sometimes joyous, sometimes heartbreaking, but always profound. She navigates the dizzying and constantly expanding array of prenatal and postnatal tests, from carrier screening to genome sequencing, while considering how access to more tests is altering perceptions of disability and changing the conversation about what sort of life is worth living and who draws the line. Along the way, she highlights the most urgent ethical quandary: Is this technology a triumph of modern medicine or a Pandora’s box of possibilities? Propelled by human narratives and meticulously reported, The Gene Machine is both a scientific road map and a meditation on our power to shape the future. It is a book that gets to the very core of what it means to be human.
