Ethical Issues in Community and Patient Stakeholder–Engaged Health Research - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Ethical Issues in Community and Patient Stakeholder–Engaged Health Research write by Emily E. Anderson. This book was released on 2023-10-31. Ethical Issues in Community and Patient Stakeholder–Engaged Health Research available in PDF, EPUB and Kindle. This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder–engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders.
The Ethics and Politics of Community Engagement in Global Health Research
The Ethics and Politics of Community Engagement in Global Health Research - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Ethics and Politics of Community Engagement in Global Health Research write by Lindsey Reynolds. This book was released on 2020-06-09. The Ethics and Politics of Community Engagement in Global Health Research available in PDF, EPUB and Kindle. Drawing on a growing consensus about the importance of community representation and participation for ethical research, community engagement has become a central component of scientific research, policy-making, ethical review, and technology design. The diversity of actors involved in large-scale global health research collaborations and the broader ‘background conditions’ of global inequality and injustice that frame the field have led some researchers, funders, and policy-makers to conclude that community engagement is nothing less than a moral imperative in global health research. Rather than taking community engagement as a given, the contributions in this edited volume highlight how processes of community engagement are shaped by particular local histories and social and political dynamics, and by the complex social relations between different actors involved in global public health research. By interrogating the everyday politics and practices of engagement across diverse contexts, the book pushes conversations around engagement and participation beyond their conventional framings. In doing so, it raises radical questions about knowledge, power, expertise, authority, representation, inclusivity, and ethics and to make recommendations for more transformative, inclusive, and meaningful community engagement. This book was originally published as a special issue of the Critical Public Health journal.
International Ethical Guidelines for Health-Related Research Involving Humans
International Ethical Guidelines for Health-Related Research Involving Humans - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook International Ethical Guidelines for Health-Related Research Involving Humans write by Council for International Organizations of Medical Sciences (CIOMS). This book was released on 2017-01-31. International Ethical Guidelines for Health-Related Research Involving Humans available in PDF, EPUB and Kindle. "In the new 2016 version of the ethical guidelines, CIOMS provides answers to a number of pressing issues in research ethics. The Council does so by stressing the need for research having scientific and social value, by providing special guidelines for health-related research in low-resource settings, by detailing the provisions for involving vulnerable groups in research and for describing under what conditions biological samples and health-related data can be used for research."--Page 4 de la couverture.
Human Challenge Studies in Endemic Settings
Human Challenge Studies in Endemic Settings - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Human Challenge Studies in Endemic Settings write by Euzebiusz Jamrozik. This book was released on 2020. Human Challenge Studies in Endemic Settings available in PDF, EPUB and Kindle. This open access book provides an extensive review of ethical and regulatory issues related to human infection challenge studies, with a particular focus on the expansion of this type of research into endemic settings and/or low- and middle-income countries (LMICs). Human challenge studies (HCS) involve the intentional infection of research participants, and this type of research is rapidly increasing in frequency worldwide. HCS are widely considered to be an especially promising approach to vaccine development, including for pathogens endemic to LMICs. However, challenge studies are sometimes controversial and raise complex ethical issues, some of which are especially salient in endemic and/or LMIC settings. Informed by qualitative interviews with experts in infectious diseases and bioethics, this book highlights areas of ethical consensus and controversy concerning this kind of research. As the first volume to focus on ethical issues associated with human challenge studies, it sets the agenda for further work in this important area of global health research; contributes to current debates in research ethics; and aims to inform regulatory policy and research practice. Insofar as it focuses on HCS in (endemic) settings where diseases are present and/or widespread, much of the analysis provided here is directly relevant to HCS involving pandemic diseases including COVID19.
Ethics in Participatory Research for Health and Social Well-Being
Ethics in Participatory Research for Health and Social Well-Being - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Ethics in Participatory Research for Health and Social Well-Being write by Sarah Banks. This book was released on 2018-08-06. Ethics in Participatory Research for Health and Social Well-Being available in PDF, EPUB and Kindle. Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of ‘research informants’ do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges. The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.
