Principles and Obstacles for Sharing Data from Environmental Health Research

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Release : 2016-04-29
Genre : Science
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Book Rating : 884/5 ( reviews)

Principles and Obstacles for Sharing Data from Environmental Health Research - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Principles and Obstacles for Sharing Data from Environmental Health Research write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2016-04-29. Principles and Obstacles for Sharing Data from Environmental Health Research available in PDF, EPUB and Kindle. On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.

Environmental Health Literacy

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Release : 2018-09-12
Genre : Medical
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Book Rating : 089/5 ( reviews)

Environmental Health Literacy - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Environmental Health Literacy write by Symma Finn. This book was released on 2018-09-12. Environmental Health Literacy available in PDF, EPUB and Kindle. This book explores various and distinct aspects of environmental health literacy (EHL) from the perspective of investigators working in this emerging field and their community partners in research. Chapters aim to distinguish EHL from health literacy and environmental health education in order to classify it as a unique field with its own purposes and outcomes. Contributions in this book represent the key aspects of communication, dissemination and implementation, and social scientific research related to environmental health sciences and the range of expertise and interest in EHL. Readers will learn about the conceptual framework and underlying philosophical tenets of EHL, and its relation to health literacy and communications research. Special attention is given to topics like dissemination and implementation of culturally relevant environmental risk messaging, and promotion of EHL through visual technologies. Authoritative entries by experts also focus on important approaches to advancing EHL through community-engaged research and by engaging teachers and students at an early age through developing innovative STEM curriculum. The significance of theater is highlighted by describing the use of an interactive theater experience as an approach that enables community residents to express themselves in non-verbal ways.

Unraveling the Exposome

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Release : 2018-10-08
Genre : Medical
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Book Rating : 211/5 ( reviews)

Unraveling the Exposome - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Unraveling the Exposome write by Sonia Dagnino. This book was released on 2018-10-08. Unraveling the Exposome available in PDF, EPUB and Kindle. This volume presents a comprehensive overview of the science and application of the Exposome through seventeen chapters from leaders in the field. At just over ten years since the term was coined by Christopher Wild in 2005, this is the first, field-defining volume to offer a holistic picture of the important and growing field of Exposomics. The term “Exposome” describes the sum of all exposures (not only chemical) that an individual can receive over a lifetime from both exogenous sources (environmental contaminants, food, lifestyle, drugs, air, etc.) and endogenous sources (metabolism, oxidative stress, lipid peroxidation, chemicals synthesized by the microbiome, etc.). The first section of this book contains chapters that discuss how the Exposome is defined and how the concept fits into the fields of public health and epidemiology. The second section provides an overview of techniques and methods to measure the human Exposome. The third section contains methods and applications for measuring the Exposome through external exposures. Section four provides an overview on statistical and computational techniques- including big data analysis - for characterizing the Exposome. Section five presents a global collection of case studies

Sharing Clinical Trial Data

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Release : 2015-04-20
Genre : Medical
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Book Rating : 324/5 ( reviews)

Sharing Clinical Trial Data - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Sharing Clinical Trial Data write by Institute of Medicine. This book was released on 2015-04-20. Sharing Clinical Trial Data available in PDF, EPUB and Kindle. Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.

Fostering Integrity in Research

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Release : 2018-01-13
Genre : Science
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Book Rating : 253/5 ( reviews)

Fostering Integrity in Research - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Fostering Integrity in Research write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2018-01-13. Fostering Integrity in Research available in PDF, EPUB and Kindle. The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support â€" or distort â€" practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices.