The Challenge of Data Sharing - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Challenge of Data Sharing write by United States. General Accounting Office. This book was released on 2000. The Challenge of Data Sharing available in PDF, EPUB and Kindle.
The challenge of data sharing : results of a GAOsponsored symposium on benefit and loan programs : report to the Committee on Governmental Affairs, U.S. Senate
The challenge of data sharing : results of a GAOsponsored symposium on benefit and loan programs : report to the Committee on Governmental Affairs, U.S. Senate - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The challenge of data sharing : results of a GAOsponsored symposium on benefit and loan programs : report to the Committee on Governmental Affairs, U.S. Senate write by . This book was released on . The challenge of data sharing : results of a GAOsponsored symposium on benefit and loan programs : report to the Committee on Governmental Affairs, U.S. Senate available in PDF, EPUB and Kindle.
Principles and Obstacles for Sharing Data from Environmental Health Research
Principles and Obstacles for Sharing Data from Environmental Health Research - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Principles and Obstacles for Sharing Data from Environmental Health Research write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2016-05-29. Principles and Obstacles for Sharing Data from Environmental Health Research available in PDF, EPUB and Kindle. On March 19, 2014, the National Academies of Sciences, Engineering, and Medicine held a workshop on the topic of the sharing of data from environmental health research. Experts in the field of environmental health agree that there are benefits to sharing research data, but questions remain regarding how to effectively make these data available. The sharing of data derived from human subjects-making them both transparent and accessible to others-raises a host of ethical, scientific, and process questions that are not always present in other areas of science, such as physics, geology, or chemistry. The workshop participants explored key concerns, principles, and obstacles to the responsible sharing of data used in support of environmental health research and policy making while focusing on protecting the privacy of human subjects and addressing the concerns of the research community. Principles and Obstacles for Sharing Data from Environmental Health Research summarizes the presentations and discussions from the workshop.
Sharing Clinical Trial Data
Sharing Clinical Trial Data - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Sharing Clinical Trial Data write by Institute of Medicine. This book was released on 2015-04-20. Sharing Clinical Trial Data available in PDF, EPUB and Kindle. Data sharing can accelerate new discoveries by avoiding duplicative trials, stimulating new ideas for research, and enabling the maximal scientific knowledge and benefits to be gained from the efforts of clinical trial participants and investigators. At the same time, sharing clinical trial data presents risks, burdens, and challenges. These include the need to protect the privacy and honor the consent of clinical trial participants; safeguard the legitimate economic interests of sponsors; and guard against invalid secondary analyses, which could undermine trust in clinical trials or otherwise harm public health. Sharing Clinical Trial Data presents activities and strategies for the responsible sharing of clinical trial data. With the goal of increasing scientific knowledge to lead to better therapies for patients, this book identifies guiding principles and makes recommendations to maximize the benefits and minimize risks. This report offers guidance on the types of clinical trial data available at different points in the process, the points in the process at which each type of data should be shared, methods for sharing data, what groups should have access to data, and future knowledge and infrastructure needs. Responsible sharing of clinical trial data will allow other investigators to replicate published findings and carry out additional analyses, strengthen the evidence base for regulatory and clinical decisions, and increase the scientific knowledge gained from investments by the funders of clinical trials. The recommendations of Sharing Clinical Trial Data will be useful both now and well into the future as improved sharing of data leads to a stronger evidence base for treatment. This book will be of interest to stakeholders across the spectrum of research-from funders, to researchers, to journals, to physicians, and ultimately, to patients.
Data Matters
Data Matters - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Data Matters write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2019-01-28. Data Matters available in PDF, EPUB and Kindle. In an increasingly interconnected world, perhaps it should come as no surprise that international collaboration in science and technology research is growing at a remarkable rate. As science and technology capabilities grow around the world, U.S.-based organizations are finding that international collaborations and partnerships provide unique opportunities to enhance research and training. International research agreements can serve many purposes, but data are always involved in these collaborations. The kinds of data in play within international research agreements varies widely and may range from financial and consumer data, to Earth and space data, to population behavior and health data, to specific project-generated dataâ€"this is just a narrow set of examples of research data but illustrates the breadth of possibilities. The uses of these data are various and require accounting for the effects of data access, use, and sharing on many different parties. Cultural, legal, policy, and technical concerns are also important determinants of what can be done in the realms of maintaining privacy, confidentiality, and security, and ethics is a lens through which the issues of data, data sharing, and research agreements can be viewed as well. A workshop held on March 14-16, 2018, in Washington, DC explored the changing opportunities and risks of data management and use across disciplinary domains. The third workshop in a series, participants gathered to examine advisory principles for consideration when developing international research agreements, in the pursuit of highlighting promising practices for sustaining and enabling international research collaborations at the highest ethical level possible. The intent of the workshop was to explore, through an ethical lens, the changing opportunities and risks associated with data management and use across disciplinary domainsâ€"all within the context of international research agreements. This publication summarizes the presentations and discussions from the workshop.
