The Ethics of Biomedical Big Data - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Ethics of Biomedical Big Data write by Brent Daniel Mittelstadt. This book was released on 2016-08-03. The Ethics of Biomedical Big Data available in PDF, EPUB and Kindle. This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.
The Big Data Agenda
The Big Data Agenda - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Big Data Agenda write by Annika Richterich. This book was released on 2018-04-13. The Big Data Agenda available in PDF, EPUB and Kindle. This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.
Big Data, Health Law, and Bioethics
Big Data, Health Law, and Bioethics - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Big Data, Health Law, and Bioethics write by I. Glenn Cohen. This book was released on 2018-03-08. Big Data, Health Law, and Bioethics available in PDF, EPUB and Kindle. When data from all aspects of our lives can be relevant to our health - from our habits at the grocery store and our Google searches to our FitBit data and our medical records - can we really differentiate between big data and health big data? Will health big data be used for good, such as to improve drug safety, or ill, as in insurance discrimination? Will it disrupt health care (and the health care system) as we know it? Will it be possible to protect our health privacy? What barriers will there be to collecting and utilizing health big data? What role should law play, and what ethical concerns may arise? This timely, groundbreaking volume explores these questions and more from a variety of perspectives, examining how law promotes or discourages the use of big data in the health care sphere, and also what we can learn from other sectors.
The Oxford Handbook of Ethics of AI
The Oxford Handbook of Ethics of AI - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Oxford Handbook of Ethics of AI write by Markus Dirk Dubber. This book was released on 2020. The Oxford Handbook of Ethics of AI available in PDF, EPUB and Kindle. This interdisciplinary and international handbook captures and shapes much needed reflection on normative frameworks for the production, application, and use of artificial intelligence in all spheres of individual, commercial, social, and public life.
The Ethics of Medical Data Donation
The Ethics of Medical Data Donation - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Ethics of Medical Data Donation write by Jenny Krutzinna. This book was released on 2019-01-16. The Ethics of Medical Data Donation available in PDF, EPUB and Kindle. This open access book presents an ethical approach to utilizing personal medical data. It features essays that combine academic argument with practical application of ethical principles. The contributors are experts in ethics and law. They address the challenges in the re-use of medical data of the deceased on a voluntary basis. This pioneering study looks at the many factors involved when individuals and organizations wish to share information for research, policy-making, and humanitarian purposes. Today, it is easy to donate blood or even organs, but it is virtually impossible to donate one’s own medical data. This is seen as ethically unacceptable. Yet, data donation can greatly benefit the welfare of our societies. This collection provides timely interdisciplinary research on biomedical big data. Topics include the ethics of data donation, the legal and regulatory challenges, and the current and future collaborations. Readers will learn about the ethical and regulatory challenges associated with medical data donations. They will also better understand the special nature of using deceased data for research purposes with regard to ethical principles of autonomy, beneficence, and justice. In addition, the contributors identify the key governance issues of such a scheme. The essays also look at what we can learn in terms of best practice from existing medical data schemes.
