Understanding Disparities in Access to Genomic Medicine - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Understanding Disparities in Access to Genomic Medicine write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2019-01-28. Understanding Disparities in Access to Genomic Medicine available in PDF, EPUB and Kindle. Genomic medicine is defined as the routine use of genomic information about an individual as part of his or her clinical care as well as the health outcomes and policy implications of that clinical use. It is one approach that has the potential to improve the quality of health care by allowing practitioners to tailor prevention, diagnostic, and treatment strategies to individual patients. In recent years, research breakthroughs, technological advances, and the decreasing cost of DNA sequencing have led to the wider adoption of genomic medicine. However, as with the introduction of new technologies into health care, there are concerns that genetic and genomic testing and services will not reach all segments of the population both now and in the near future, and there remains a gap in knowledge regarding potential health care disparities in genomic medicine and precision health approaches. On June 27, 2018, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to examine the gaps in knowledge related to access to genomic medicine and to discuss health care disparities and possible approaches to overcoming the disparate use of genomic medicine among populations. Workshop participants discussed research on access to genetics and genomics services in medically underserved areas, model programs of care for diverse patient populations, and current challenges and possible best practices for alleviating health care disparities as they relate to genomics-based approaches. This publication summarizes the presentations and discussions from the workshop.
Implementing and Evaluating Genomic Screening Programs in Health Care Systems
Implementing and Evaluating Genomic Screening Programs in Health Care Systems - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Implementing and Evaluating Genomic Screening Programs in Health Care Systems write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2018-06-16. Implementing and Evaluating Genomic Screening Programs in Health Care Systems available in PDF, EPUB and Kindle. Genomic applications are being integrated into a broad range of clinical and research activities at health care systems across the United States. This trend can be attributed to a variety of factors, including the declining cost of genome sequencing and the potential for improving health outcomes and cutting the costs of care. The goals of these genomics-based programs may be to identify individuals with clinically actionable variants as a way of preventing disease, providing diagnoses for patients with rare diseases, and advancing research on genetic contributions to health and disease. Of particular interest are genomics- based screening programs, which will, in this publication, be clinical screening programs that examine genes or variants in unselected populations in order to identify individuals who are at an increased risk for a particular health concern (e.g., diseases, adverse drug outcomes) and who might benefit from clinical interventions. On November 1, 2017, the National Academies of Sciences, Engineering, and Medicine hosted a public workshop to explore the challenges and opportunities associated with integrating genomics-based screening programs into health care systems. This workshop was developed as a way to explore the challenges and opportunities associated with integrating genomics-based programs in health care systems in the areas of evidence collection, sustainability, data sharing, infrastructure, and equity of access. This publication summarizes the presentations and discussions from the workshop.
Educating Health Professionals in Genomic Medicine: Evidence-Based Strategies and Approaches
Educating Health Professionals in Genomic Medicine: Evidence-Based Strategies and Approaches - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Educating Health Professionals in Genomic Medicine: Evidence-Based Strategies and Approaches write by Sylvia Ann Metcalfe. This book was released on 2020-10-09. Educating Health Professionals in Genomic Medicine: Evidence-Based Strategies and Approaches available in PDF, EPUB and Kindle. This eBook is a collection of articles from a Frontiers Research Topic. Frontiers Research Topics are very popular trademarks of the Frontiers Journals Series: they are collections of at least ten articles, all centered on a particular subject. With their unique mix of varied contributions from Original Research to Review Articles, Frontiers Research Topics unify the most influential researchers, the latest key findings and historical advances in a hot research area! Find out more on how to host your own Frontiers Research Topic or contribute to one as an author by contacting the Frontiers Editorial Office: frontiersin.org/about/contact.
The Promises and Perils of Digital Strategies in Achieving Health Equity
The Promises and Perils of Digital Strategies in Achieving Health Equity - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook The Promises and Perils of Digital Strategies in Achieving Health Equity write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2016-07-22. The Promises and Perils of Digital Strategies in Achieving Health Equity available in PDF, EPUB and Kindle. Health care is in the midst of a dramatic transformation in the United States. Spurred by technological advances, economic imperatives, and governmental policies, information technologies are rapidly being applied to health care in an effort to improve access, enhance quality, and decrease costs. At the same time, the use of technologies by the consumers of health care is changing how people interact with the health care system and with health information. These changes in health care have the potential both to exacerbate and to diminish the stark disparities in health and well-being that exist among population groups in the United States. If the benefits of technology flow disproportionately to those who already enjoy better coverage, use, and outcomes than disadvantaged groups, heath disparities could increase. But if technologies can be developed and implemented in such a way to improve access and enhance quality for the members of all groups, the ongoing transformation of health care could reduce the gaps among groups while improving health care for all. To explore the potential for further insights into, and opportunities to address, disparities in underserved populations the National Academies of Sciences, Engineering, and Medicine held a workshop in October 2014. The workshop focused on (1) how communities are using digital health technologies to improve health outcomes for racial and ethnic minority populations, (2) how community engagement can improve access to high-quality health information for members of these groups, and (3) on models of successful technology-based strategies to reduce health disparities. This report summarizes the presentations and discussions at the workshop.
Exploring the Current Landscape of Consumer Genomics
Exploring the Current Landscape of Consumer Genomics - read free eBook in online reader or directly download on the web page. Select files or add your book in reader. Download and read online ebook Exploring the Current Landscape of Consumer Genomics write by National Academies of Sciences, Engineering, and Medicine. This book was released on 2020-07-23. Exploring the Current Landscape of Consumer Genomics available in PDF, EPUB and Kindle. Consumer genomics, encompassing both direct-to-consumer applications (i.e., genetic testing that is accessed by a consumer directly from a commercial company apart from a health care provider) and consumer-driven genetic testing (i.e., genetic testing ordered by a health care provider in response to an informed patient request), has evolved considerably over the past decade, moving from more personal utility-focused applications outside of traditional health care to interfacing with clinical care in nontraditional ways. As consumer genomics has increasingly intersected with clinical applications, discussions have arisen around the need to demonstrate clinical and analytical validity and clinical utility due to the potential for misinterpretation by consumers. Clinical readiness and interest for this information have presented educational and training challenges for providers. At the same time, consumer genomics has emerged as a potentially innovative mechanism for thinking about health literacy and engaging participants in their health and health care. To explore the current landscape of consumer genomics and the implications for how genetic test information is used or may be used in research and clinical care, the Roundtable on Genomics and Precision Health of the National Academies of Sciences, Engineering, and Medicine hosted a public workshop on October 29, 2019, in Washington, DC. Discussions included such topics as the diversity of participant populations, the impact of consumer genomics on health literacy and engagement, knowledge gaps related to the use of consumer genomics in clinical care, and regulatory and health policy issues such as data privacy and security. A broad array of stakeholders took part in the workshop, including genomics and consumer genomics experts, epidemiologists, health disparities researchers, clinicians, users of consumer genomics research applications, representatives from patient advocacy groups, payers, bioethicists, regulators, and policy makers. This publication summarizes the presentations and discussion of the workshop.
